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Are You a Parent of a Child With a Disease? Discover Ways to Include the Siblings of a Child that Has a Disease.

Pediatric Home Health Care near Rockville Center, NY – Strengthening the Family

If you are the parent of a child with a neuromuscular disease (NMD), you may spend a lot of your time focusing on how to make life more comfortable and enjoyable for this child. While this is extremely important, it’s also imperative for you to take time to explain the disease and listen to concerns from siblings.

Having a child with a neuromuscular disease can affect the entire family. Often times, siblings will have questions and concerns regarding what the disease is and they may feel left out or unattended to. Here are a few things you can do to make sure the siblings of a child who has NMD feel included, valued, and well informed about the disease.

  1. Be open with you children on your true feelings about having a child with NMD. Being open with your children will allow them to feel comfortable sharing their thoughts and fears with you. Talk about what NMD is and what the symptoms are. If your children have questions, answer them. Chances are, your children will be concerned about their sibling’s health and may just want you to listen or give them a hug.
  2. Spend special alone time with each of your children. Make sure they know you love them and acknowledge them as an individual. Spend time doing family activities that cater to each of your children’s interests.
  3. Don’t give your children too much responsibility. While you may need them to help out or do extra chores, make sure you are treating them like a child and not an adult. Your children may act out due to not being able to fully express what they feel; do your best to be understanding.

Having a child with NMD can be difficult for siblings but the good news is, children are adaptable. Be open with your children about NMD, spend alone time with each and every one, and allow them to be kids for as long as possible. Children only have one childhood, and sometimes parents forget because they have so many things on the go. Your children will benefit from taking part in caregiving, but they also need plenty of alone, individualized time as well, to discover who they are and develop in other ways. You can all work together to strengthen your family unit.

Some families find setting aside one evening per week, preferably on the same night, for a family activity of some kind, has successfully brought their family closer together.

Consider pediatric home health care to assist you with your child’s medical care needs.

If you or an aging loved one are in need of Pediatric Home Health care services near Rockville Center, NY or the surrounding areas, contact the caring professionals at Star Multi Care Services today at (631)956-8835. We are the Right Choice for Home Health Care Services!

Providing Services to Floral Park, Great Neck, Manhasset, Rockville Center, Plainview, Huntington, Massapequa, Dix Hills, Northport, and Stonybrook

Stephen Sternbach

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